Tag: asperger’s

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Mikaela Renee Lynch

Mikaela Renee LynchSometimes you get your heartstrings pulled in not a good way. Last Friday my daughter’s class attended the Special Olympics at Kezar Stadium. As I’m sure most of you are aware, my daughter is autistic. While we were waiting for her turn to perform we were all sitting and waiting with the kids just getting more and more excited having to sit still and not getting to run around like kids want to do. Sitting next to me was a girl who is all over the news right now — Mikaela Renee Lynch.

She attends my daughter’s school and is autistic like my daughter. She always has an aid with her because she can’t function on her own and like many autistic children and will take the first chance she gets to run off and explore. Mikaela, like my daughter is a curious little girl. She doesn’t run off like most kids, she runs off because she might see something she wants to take a closer look at. Parents of autistic kids know this and understand that you have to keep an eye on your children at all times and even turning your head for a second means you can lose them momentarily.

Well, this is a worst case scenario in that Mikaela wasn’t lost momentarily, they’re still looking for her. The information coming in while up to the minute hasn’t had enough time to be processed yet so no one really knows what is happening. What I do know is this, Special Ed teachers and aids from her school have gone up to help find her because they know her and she knows them which might help. While Mikaela likes water, it looks like there is now video footage of her away from the creek which is good. Most kids don’t learn how to swim early enough in my book, and autistic kids have a harder time understanding the concept of swimming. Add to this that we’re talking about a creek with running water that can be up to 11 feet deep and not a bathtub in a secure location makes it even scarier. So I’m glad that they don’t think she went into the creek.

Mikaela Renee LynchThe down side to this is that it is now Wednesday and she went missing on Sunday. Even for a non-autistic child that’s a long time. Where is she is what we all want to know. Reports have said that Mikaela has the mental state of a one year old. While that’s a convenient starting point there’s more to her than that. She’s ridden horses. She knows she loves peanut butter and crackers. She can walk and run. She can run very fast too. While I’m no expert I have noticed that autistic children tend to be rather strong and seeing as Mikaela is built like my daughter only older and bigger she’s a lot of work to keep from running if she doesn’t want to go along with it. Aids have switched off watching her because she can tire a person out quickly. This isn’t a bad side so much as it is just the way some autistic children are wired. When you hear the word autistic, don’t think retarded. While there is some developmental delay in some autistic children it’s not the same thing as metal retardation. Speech is frequently a problem with autistic children and when they do start to speak they tend to have problems enunciating words so as a parent or someone who works with autistic children have to learn a new language to communicate with them. My daughter is six and doesn’t know how to swear, but she needed something to say when she was upset and so she mutters, bugga-digga. That’s her swear word she invented to express herself. We don’t really know what that means to her, but we understand the context.

Unfortunately context is something that is being left out in many of the reports. If you’ve never been around an autistic child you aren’t able to see these things. While Mikaela is non-verbal there are little ways she uses to express herself. She flaps her arms wildly when she’s excited like many autistic kids. She falls to the ground when she’s tired of being held to get away, not because she can’t stand. There are lots of people out there trying to find Mikaela and I hope that they find her soon. She’s a sweet little girl that needs help and I hope for the best for all of those who are out looking for her.

UPDATE: It is with a heavy heart that I have to report the following information received from the Clearlake Police Department:

Clearlake Police Chief Craig Clausen has confirmed that the body of nine year old Mikaela Lynch has been found in Cache Creek about forty five minutes ago.

The family did not offer a statement and has asked that everyone respect their privacy at this time.

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The San Francisco Unified School District

If you have a child in San Francisco that attends public school then you’re very aware of the lottery system for which school your child can get to attend. I’ve yet to hear about this happening in other cities, but it is a crazy system for San Francisco to have and we were lucky…WE BEAT THE SYSTEM!

I’m not sure why we did, but it could be because our daughter is autistic so there’s a smaller pool of kids to draw from. You can put down up to 16 different schools you want your child to attend and you’ll hopefully get one of them. Most parents put down 10 schools [note this is for elementary school, middle schools and high schools have less choicees]. From comments I’ve read there are many parents who put down 10 schools and didn’t get any of them and ended up having to in some cases drive their kids across town to attend school.

When I was a kid you went to the school in your neighborhood and we had class sizes of around 20-30 kids. We didn’t have any problems back then even though there was talk of over crowding. Then when I was getting ready for fourth grade bussing started which brought kids from bad neighborhoods to good neighborhoods and vice versa. Please note the bold/italics is the equivalent of doing the old finger quotation thing. At least they had bussing to get the kids to school back then. They only have that for kids who are in SDC classes now.

It was not a good time as I was supposed to be sent to Aptos Elementary [note it wasn’t a middle school or Junior High as we used to call them] and my Mother was down at the Board of Education kicking and screaming. In the end I ended up going to Lawton Elementary which was the closest to my house since they split out fourth-sixth grades [elementary schools before that were K-6].

What we have today is similar, but we have managed to fare through it very well. We only put down two schools that had SDC [Special Day Classes] that fit our daughter’s needs. We would have been happy with either. We knew the Kindergarten teacher at her current school and he’s a great guy. We got to meet the teacher at the school closer to us and knew that she mentored some of the people who were therapists for our daughter. Everyone had wonderful things to say all around.

Once we got accepted that’s not the end of things. You have to go to the school and fill out enrollment paperwork. We did that yesterday and after a few hiccups we got everything done. Note to parents of SDC kids, while the paper they send you says you don’t need to bring a birth certificate and proof of residence if you’re already enrolled in the SFUSD, ignore that. They sent us home to bring that back.

My Wife sent an email to the teacher that our daughter will have and she promptly sent back an email saying that she wants to visit our daughter at her school and talk with her current teacher as well as coming by our house to meet with us and see how she is outside of school. Some of you may think this sounds like a Child Protective Services thing, but it’s not. Autistic kids think different than other kids. My daughter can barely talk, but she can make music on her iPad in Garageband with very little help from me. The teacher wants to understand how your child’s mind works so she can incorporate the appropriate classwork into her daily life.

The Principal at the school even remembered us and had a long chat with us while the paperwork was being processes [it turns out she taught at my elementary school and knew many of my teachers. She even tried to flatter me by saying she might have been one of my teachers, but we only had old prune faced teachers close to their 70’s when I was in elementary school].

All in all I knew that it would work out for us. My Wife who worries more about these things is ecstatic at the moment so I’ll just shut my trap and let her enjoy it. Sometimes the world isn’t always out to get you and things work out in the end.

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John Muir Elementary School

John Muir Elementary School offers pre-school for special needs children. You’ve heard me talk about this before, they can be kids with autism, asperger’s syndrome, developmental disabilities, etc. The problem is that John Muir doesn’t have any form of play structure at the school. It is a barebones asphalt yard with a chain link fence around it. Kind of like something you would expect to see in industrial era Russian and not 21st century United States.

John Muir is a part of the Pepsi Refresh Contest where good causes can win $20,000 to help out their cause. I feel that this is a good cause to support. I have seen my daughter at school during recess and she has access to a lot of things to play with and a climbing structure. Children need to develop body strength and they can’t do that through only aerobic exercise of running around in circles. They need to challenge their muscles to help them grow.

They have until September 30th to be in the top 15 vote recipients and I’m sorry I didn’t hear about this earlier or I would have posted something then. There are three ways you can help and none of them should cost you a dime [unless you have to pay for text messaging.]

  1. Go to http://www.refresheverything.com/muirautismplayground and click on the vote button and use your Facebook login to vote.
  2. If you don’t have a Facebook account you can go to the same link and create a Pepsi account and vote that way [even in addition to you Facebook vote]
  3. Text 108702 to 73774

This is something you can do everyday until the end of the week. Pepsi is footing the bill and not your local, state or federal government so the only money is coming from a large corporation. I urge all of you to do this right now and repeat it and pass along a link to this page so that they can get as much help as possible. No child should have to go to a school where they don’t have any place to blow off some steam during recess. The kids will be happier and the Teacher’s will be happier. Let’s see if we can make a change here.

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World Autism Awareness Day in San Francisco

Today I’m having yet another guest blogger and that is my wife Mama Fog who runs her own blog about what she has learned about autism to help her better understand how to deal with the system when it comes to our daughter. You can read more on her site Out of the Fog.

Tomorrow is World Autism Awareness Day.  It seems like a perfect time to list some of the local resources available for families with autism.

Autistic Like, Graham’s Story, the movie will be airing on some PBS stations.

Support for Families of Children with Disabilities hosts workshops, support groups and trainings.  They offer parent mentors, a library and many online resources.  I think their IEP workshop is a must for any parent of a student with an IEP.

List of autism friendly local activities and attractions.  Includes times and dates for the AMC sensory friendly movies and times at bounce houses around the area.

Our daughter is too young for these activities, but I have heard good things about them.

SF Park and Rec Adaptive and Inclusive Programs

KEEN – Kids Enjoy Exercise Now

Special Olympics of Northern California

Janet Pomeroy Center

Parents of children under 3 with a child with autism will be eligible for some help from Early Intervention.   Contact the Golden Gate Regional Center.

Like most city school districts, SFUSD is confusing at best: San Francisco Unified School District’s Special Education

Last year an audit was done on SFUSD’s special education programs and services.  The report was not favorable.

SFUSD is attempting to remedy this.  They are allowing special ed inclusion students to apply at any SF school.   It remains to be seen how this will be supported: San Francisco Unified School District Community Advisory Committee for Special Education

Community Alliance for Special Education offers free and low cost legal counseling and advocacy for families with special needs.

The blog SF K files documents the journey of several parents going through the gauntlet that is the admissions process here in our lovely city.  I’m pleased that they are featuring parents of children in special education.

Here’s a great post about the special education enrollment process.

Redwood City knows how to start and maintain a special ed PTA.  SF should have this too!

Other local bloggers and sites:

Senior Dad

Laura Shumaker

Squidalicious

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Playgrounds R Us

Since it’s spring break and our daughter is too young to be running around half naked with drunken frat boys we have to find something to entertain her with. Now that we’re having real weather again in San Francisco we’ve been visiting some of the local playgrounds and have found a few surprises.

This week we went to a playground we haven’t been to in over a year. It’s the Junipero Serra Playground that a block away from the Stonestown Galleria. The nice part about this playground is you can’t see it from any major street. This means that it’s hardly ever crowded. At best there was maybe 12 people at the spot. If you’re a parent of an autistic child this place is a real god send because there’s not a ton of kids running around screaming with joy that can overwhelm your child.

The nice thing about playground today is that they aren’t like the ghetto, industrial playgrounds of my youth. Back in my day [christ I can’t believe I used that phrase] playgrounds were steel, concrete and sharp tanbark. They all looked like something built in cold war Russia. Now they are nice and soft with no sharp pointy things to poke your kids eyes out.

The playgrounds we have today are nice, generally peaceful spots where your kid can run around and well, be a kid. They have much more inviting structures with very little chance for injury and the parents don’t have to keep an eye on their kids as much because if a kid falls you don’t have to worry about a broken tooth or arm because they’re filled with soft puffy foam.

Now this could be construed as a bit of molly coddling for kids and a few people could make allusions to the real world isn’t soft and cuddly, but I don’t think we need to make our kids suffer the harsh realities of the world at a young age. They need a place that they can exercise their minds by making stuff up as they go along. I found myself watching my daughter on the structure in the picture above walking around like it could have been a pirate ship running and jumping and climbing in ways that I wished I could of as a kid.

Then there are people who think the opposite. They aren’t the young kids using their imagination they’re the bored teenage few that don’t have home computers with World of Warcraft to waste their time after school, but can find a way to get their hands on a few cans of spray paint and try to ruin it for the others.

Here was a pretty close to pristine playground except for the sand that always overflows the sand box and a couple of kids had to try and ruin it by leaving their names which no one can read because they lacked proper penmanship and they know that the city lacks the funds to clean up their damage after they’ve finished.

This playground has a really nice rec center, but I’ve never seen anyone inside it or any listing of events here. Around the corner is a set of picnic tables under a well constructed pergola that would be a perfect staging point for a small party. Aside from the graffiti the only thing wrong with this playground was that one of the drinking fountains was backed up. I found a few small sticks that I tried to loosen up the drain with, but it didn’t work. I did notice a guy from park and rec walked around taking pictures and making a few phone calls so hopefully this will be changed in the near future.

Perhaps some of the vandalism is due to the high cost of other attractions around San Francisco that can turn kids minds around. While most of the big attractions in San Francisco have a “Po’ people’s day” where they are open to the masses for free, that also makes them crowded and gives our kids less chance to see and learn from them. Luckily not all playgrounds have been hit with graffiti and vandalism. Today we will stop by another spot that will not have the graffiti and our daughter will have another chance to entertain herself.

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Dealing with Autism…

As most of you are aware my daughter, Becca has been diagnosed with autism. While she is in a classroom for severely diagnosed children with special needs she has been coming along quite well with the ABA therapy she has been receiving. After reading many of the articles out there on autistic children using iPads to communicate and after seeing Rebecca’s reactions to my iPhone she definitely is a techie kid and she loves music.

She was a born musician and loves spending her time banging on the drums that we have gotten her to the point that some of them are a bit worn out now. If we can raise enough money to buy her an iPad 2 we will definitely be getting GarageBand for the iPad because of its built in virtual instruments that will allow a four year old to play the piano, guitar and drums.I also have several programs for my iPhone that she uses to help communicate to us what she wants, but with it’s small screen and her small fingers I think an iPad will work better for her. She still has a few problems with fine motor skills in which an iPhone doesn’t help too much.

I don’t like to ask for handouts, but my wife and I are unemployed at the moment and we cannot afford to purchase an iPad for her. I had google adsense up here and had earned enough to more than cover the cost plus some additional speech therapy, but google has informed me that it’s not giving me the money due to “invalid clicks” which I wasn’t doing and have no control over. I will try to work this out with them, but oddly enough I was notified of this after the first month I was eligible to get money from google, so they have essentially screwed my daughter out of an iPad.

If you could even donate a dollar by clicking on the link below we would greatly appreciate it and I’ll make sure to keep you all in the loop as to how she is progressing with it. I am told that ChipIn lets me check who the donors are and I will give the largest donor a personally autographed copy of my CD, I’ve got a guitar and I’m not afraid to use it! if we collect the money.

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Becca’s Birthday and the SFUSD

Yesterday was my daughter’s fourth birthday and she had a fun party at her pre-school. My daughter was diagnosed with autism right around her second birthday and having to deal with autism in a child can be a struggle. I have to say that the City and County of San Francisco did it right this time. We received early intervention assistance through the Golden Gate Regional Center until she was three. They came daily and worked with her to help her with her speech and behavior and they did a great job.

When she turned three she moved away from GGRC services to the San Francisco Unified School District’s pre-school for children with special needs. This is more than just autistic children, but some who are mentally retarded or physically handicapped so it can be difficult for the teachers let alone with them having to deal with the wide spectrum that covers autism. In looking at the choices that were available to us we finally chose Grattan Elementary School because they seemed to have the best people for the job there.

Well, I have to say that Becca’s teacher Kara is THE super cool pre-school teacher. She is very similar to the teacher’s I had as child with the exception that she’s not a few years from retirement and prune-faced like my teachers were. She’s young and energetic and has the assistance of a few aides to help with some of the more problematic kids. Kara loves all of the kids she teaches and gets to know them all very well and all of their idiosyncrasies.

We brought doughnuts, party hats and horns for the party and the kids couldn’t have been happier. Her friend Jeffrey that she rides to school with every day helped her put on her party hat because he’s the kid who looks over all the other kids in class. Becca’s other friend Brandon showed off by stuffing an entire doughnut in his mouth and eating it without choking.

Kara as well as her aides have had special training in dealing with physically and mentally challenged kids. Autism is kind of hard to explain to some people because they equate it with mental retardation — it’s not. There are lots of people with autistic kids who argue that this thing or that causes autism, but it’s such a wide spectrum of behavior that I can’t put a finger on any one thing and I don’t really want to go there. When you first see our daughter you don’t really notice anything wrong until you notice she doesn’t talk much. She’s getting a lot better at talking now, but to a lot of people she’d just look like a quiet little kid. Little being relative because she’s four feet tall at four years of age.

What is a bit troubling is that the school district doesn’t have the funding to cover the kids needs. Kara gets $5 per child per year. That’s it, nothing else. She has to purchase items for her class out of her own pocket or ask parents to bring in the things she needs. Even though we aren’t floating in money we do what we can to help out. It amazes me how well she is able to do with so little money. It’s just a shame that there isn’t enough money to help our kids get a better education.