Tag: autistic

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Mikaela Renee Lynch

Mikaela Renee LynchSometimes you get your heartstrings pulled in not a good way. Last Friday my daughter’s class attended the Special Olympics at Kezar Stadium. As I’m sure most of you are aware, my daughter is autistic. While we were waiting for her turn to perform we were all sitting and waiting with the kids just getting more and more excited having to sit still and not getting to run around like kids want to do. Sitting next to me was a girl who is all over the news right now — Mikaela Renee Lynch.

She attends my daughter’s school and is autistic like my daughter. She always has an aid with her because she can’t function on her own and like many autistic children and will take the first chance she gets to run off and explore. Mikaela, like my daughter is a curious little girl. She doesn’t run off like most kids, she runs off because she might see something she wants to take a closer look at. Parents of autistic kids know this and understand that you have to keep an eye on your children at all times and even turning your head for a second means you can lose them momentarily.

Well, this is a worst case scenario in that Mikaela wasn’t lost momentarily, they’re still looking for her. The information coming in while up to the minute hasn’t had enough time to be processed yet so no one really knows what is happening. What I do know is this, Special Ed teachers and aids from her school have gone up to help find her because they know her and she knows them which might help. While Mikaela likes water, it looks like there is now video footage of her away from the creek which is good. Most kids don’t learn how to swim early enough in my book, and autistic kids have a harder time understanding the concept of swimming. Add to this that we’re talking about a creek with running water that can be up to 11 feet deep and not a bathtub in a secure location makes it even scarier. So I’m glad that they don’t think she went into the creek.

Mikaela Renee LynchThe down side to this is that it is now Wednesday and she went missing on Sunday. Even for a non-autistic child that’s a long time. Where is she is what we all want to know. Reports have said that Mikaela has the mental state of a one year old. While that’s a convenient starting point there’s more to her than that. She’s ridden horses. She knows she loves peanut butter and crackers. She can walk and run. She can run very fast too. While I’m no expert I have noticed that autistic children tend to be rather strong and seeing as Mikaela is built like my daughter only older and bigger she’s a lot of work to keep from running if she doesn’t want to go along with it. Aids have switched off watching her because she can tire a person out quickly. This isn’t a bad side so much as it is just the way some autistic children are wired. When you hear the word autistic, don’t think retarded. While there is some developmental delay in some autistic children it’s not the same thing as metal retardation. Speech is frequently a problem with autistic children and when they do start to speak they tend to have problems enunciating words so as a parent or someone who works with autistic children have to learn a new language to communicate with them. My daughter is six and doesn’t know how to swear, but she needed something to say when she was upset and so she mutters, bugga-digga. That’s her swear word she invented to express herself. We don’t really know what that means to her, but we understand the context.

Unfortunately context is something that is being left out in many of the reports. If you’ve never been around an autistic child you aren’t able to see these things. While Mikaela is non-verbal there are little ways she uses to express herself. She flaps her arms wildly when she’s excited like many autistic kids. She falls to the ground when she’s tired of being held to get away, not because she can’t stand. There are lots of people out there trying to find Mikaela and I hope that they find her soon. She’s a sweet little girl that needs help and I hope for the best for all of those who are out looking for her.

UPDATE: It is with a heavy heart that I have to report the following information received from the Clearlake Police Department:

Clearlake Police Chief Craig Clausen has confirmed that the body of nine year old Mikaela Lynch has been found in Cache Creek about forty five minutes ago.

The family did not offer a statement and has asked that everyone respect their privacy at this time.

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Autism vs. The iPad

As I’m sure you remember we were able to get an iPad for our daughter during a time when we didn’t have much money [which is a fate we still share today]. She loves the iPad a lot and I thank again all of my readers who help us get it for her. Then my wife came running into my workspace all white face with a look of horror and my daughter running behind quickly screaming and crying — I think we just lost the iPad.

WHAT!? She handed it to me and it looked fine until she peeled back the case and showed me the dent. The dent happened to come right where the volume up and down keys were and while it still worked we couldn’t get any volume out of it. I quickly got an appointment at the Genius Bar to have them take a look and then started doing some research.

I was seeing everything from a few people who got it replaced free to most people who had to pay $299 or buy a new one. My heart sunk. This is my daughter’s baby. She treats it like a puppy hugging it and petting it. She never throws it or drops it unlike many of her other toys. She knows this is something special for her.

For any parent of a child whether they have autism or not I would highly suggest an iPad. My daughter has improved so much since we got it for her. She couldn’t point at things before, but now points to things that she doesn’t know the name of. She’s learned how to say words she never said a year ago and now she can even write. Sure she has therapists that help her out, but a lot of this even the therapists say comes from the iPad. It has helped her immensely and I was pretty devastated to learn that this great tool we had for her might be gone and we don’t have the money or credit to afford to get it fixed or buy a new one.

I went into the Apple store thinking to myself well, maybe I could ask for donations again, but I don’t really like begging. If you like the blog and want to make a donation feel free to do so, but I refuse to sit out there on the internet with a cup in hand asking spare change from everyone who comes to my blog. I’ve been getting enough work from TaskRabbit to help us get by until I can get a real job again so I figured I could find a way to make it work out.

So my Genius is guy named Tony. I told him the story and how this is our autistic daughter’s best friend [yes, I played the autism card, but it was important because of what she’s got from it.] Tony took a look and said, well, it’s only a little dent and no screen damage so we’ll replace it for you right now.

DUDE!! AWWWWWESOME!

So the crisis has been averted and we’re in the process right now of getting the back up reinstalled on the iPad. Tony suggested that we get an Otterbox case for it which my wife and I have been talking about for a while. Now it’s obviously a definite buy item. I think I’ll have to take on a few more tasks to get the money to cover this one, but it’ll be worth it in the long run if it’s something that is helping our daughter improve herself.

Tony, thanks for helping a brother out.

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Thank you all very much!

A friend of mine and I were talking one day and we came up with the idea if you could get a million people to give you $1 a year for something that was relatively meaningful you wouldn’t have to work again.

Well, I tried that and it hasn’t worked yet, but apparently there were enough of you who thought enough to send me a few bucks to help us get an iPad 2 for our daughter. As we expected she loves it and has taken to it quickly from day one. We found several apps that are really helping her out such as the several ABA [applied behavioral analysis] apps that have gotten her talking more since we got it on Thursday. These apps show a picture of something with the word underneath and it says the word and waits for the child to repeat it. In some you can even record your own voice. We even downloaded an app that I call “Stephen Hawking” because it’s meant for people who can’t talk to be able to talk by hitting buttons on the iPad and it will speak in man or woman’s voice. We haven’t really used that with her because she’s talking more from the ABA apps.

We also found several apps that have her drawing pictures and letters and numbers in a somewhat structured way, but when she puts the iPad down and moves to crayons and paper you can see the difference. Then there are the music programs. Since my Wife and I are both musicians it’s no surprise that she’s taken to music and considering that I play guitar and my Wife plays bass it would only seem natural for our daughter to take to the drums.

I have to say that Garage Band’s built in instruments are really giving her a lot of excitement and while she’s not able to keep a 4/4 beat yet she has the virtual drum kits to help her out. The keyboard she also loves because it’s much more larger than on the iPhone apps I tried. Even though she has small fingers the iPhone. is still too small for her tiny fingers when she has some problems with fine motor skills.

My Wife downloaded a copy of Fruit Ninja for herself, but yesterday when I started to play with it Rebecca took to it in an instant. There’s not much for her to learn from the game, but she is perfecting her fine motor skills more.

Normally when we go upstairs for dinner it has to be ready right then and there or she starts throwing a fit. Autistic kids tend to be a little impatient at times, but now I just have to pull out the iPad and open up the YouTube app and we can quietly sit together and watch some of the sesame street cartoons we have saved as her favorites.

All in all I have to say that if you have a kid with special needs, get an iPad. It may take your child a few days to start to get it, but at four Rebecca’s becoming a pro already. If your kids like to tear up books like Rebecca does, there are many you can download that have a soundtrack that reads the book to them while highlighting the words.

There are many apps that are free with an upgrade so you have a chance to try before you buy which is good. For some of the apps we don’t even need to upgrade yet, but for the better ones we’ve already upgraded for the 99¢-$2.99 the apps run. So go for it. You’ll find it will change your child for the better.

Special thanks go out to Harry, Leon, Michael, Ian, Clint & Lyubov who donated. We really appreciate what you’ve done to help us help our daughter.

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Playgrounds R Us

Since it’s spring break and our daughter is too young to be running around half naked with drunken frat boys we have to find something to entertain her with. Now that we’re having real weather again in San Francisco we’ve been visiting some of the local playgrounds and have found a few surprises.

This week we went to a playground we haven’t been to in over a year. It’s the Junipero Serra Playground that a block away from the Stonestown Galleria. The nice part about this playground is you can’t see it from any major street. This means that it’s hardly ever crowded. At best there was maybe 12 people at the spot. If you’re a parent of an autistic child this place is a real god send because there’s not a ton of kids running around screaming with joy that can overwhelm your child.

The nice thing about playground today is that they aren’t like the ghetto, industrial playgrounds of my youth. Back in my day [christ I can’t believe I used that phrase] playgrounds were steel, concrete and sharp tanbark. They all looked like something built in cold war Russia. Now they are nice and soft with no sharp pointy things to poke your kids eyes out.

The playgrounds we have today are nice, generally peaceful spots where your kid can run around and well, be a kid. They have much more inviting structures with very little chance for injury and the parents don’t have to keep an eye on their kids as much because if a kid falls you don’t have to worry about a broken tooth or arm because they’re filled with soft puffy foam.

Now this could be construed as a bit of molly coddling for kids and a few people could make allusions to the real world isn’t soft and cuddly, but I don’t think we need to make our kids suffer the harsh realities of the world at a young age. They need a place that they can exercise their minds by making stuff up as they go along. I found myself watching my daughter on the structure in the picture above walking around like it could have been a pirate ship running and jumping and climbing in ways that I wished I could of as a kid.

Then there are people who think the opposite. They aren’t the young kids using their imagination they’re the bored teenage few that don’t have home computers with World of Warcraft to waste their time after school, but can find a way to get their hands on a few cans of spray paint and try to ruin it for the others.

Here was a pretty close to pristine playground except for the sand that always overflows the sand box and a couple of kids had to try and ruin it by leaving their names which no one can read because they lacked proper penmanship and they know that the city lacks the funds to clean up their damage after they’ve finished.

This playground has a really nice rec center, but I’ve never seen anyone inside it or any listing of events here. Around the corner is a set of picnic tables under a well constructed pergola that would be a perfect staging point for a small party. Aside from the graffiti the only thing wrong with this playground was that one of the drinking fountains was backed up. I found a few small sticks that I tried to loosen up the drain with, but it didn’t work. I did notice a guy from park and rec walked around taking pictures and making a few phone calls so hopefully this will be changed in the near future.

Perhaps some of the vandalism is due to the high cost of other attractions around San Francisco that can turn kids minds around. While most of the big attractions in San Francisco have a “Po’ people’s day” where they are open to the masses for free, that also makes them crowded and gives our kids less chance to see and learn from them. Luckily not all playgrounds have been hit with graffiti and vandalism. Today we will stop by another spot that will not have the graffiti and our daughter will have another chance to entertain herself.

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Becca’s Birthday and the SFUSD

Yesterday was my daughter’s fourth birthday and she had a fun party at her pre-school. My daughter was diagnosed with autism right around her second birthday and having to deal with autism in a child can be a struggle. I have to say that the City and County of San Francisco did it right this time. We received early intervention assistance through the Golden Gate Regional Center until she was three. They came daily and worked with her to help her with her speech and behavior and they did a great job.

When she turned three she moved away from GGRC services to the San Francisco Unified School District’s pre-school for children with special needs. This is more than just autistic children, but some who are mentally retarded or physically handicapped so it can be difficult for the teachers let alone with them having to deal with the wide spectrum that covers autism. In looking at the choices that were available to us we finally chose Grattan Elementary School because they seemed to have the best people for the job there.

Well, I have to say that Becca’s teacher Kara is THE super cool pre-school teacher. She is very similar to the teacher’s I had as child with the exception that she’s not a few years from retirement and prune-faced like my teachers were. She’s young and energetic and has the assistance of a few aides to help with some of the more problematic kids. Kara loves all of the kids she teaches and gets to know them all very well and all of their idiosyncrasies.

We brought doughnuts, party hats and horns for the party and the kids couldn’t have been happier. Her friend Jeffrey that she rides to school with every day helped her put on her party hat because he’s the kid who looks over all the other kids in class. Becca’s other friend Brandon showed off by stuffing an entire doughnut in his mouth and eating it without choking.

Kara as well as her aides have had special training in dealing with physically and mentally challenged kids. Autism is kind of hard to explain to some people because they equate it with mental retardation — it’s not. There are lots of people with autistic kids who argue that this thing or that causes autism, but it’s such a wide spectrum of behavior that I can’t put a finger on any one thing and I don’t really want to go there. When you first see our daughter you don’t really notice anything wrong until you notice she doesn’t talk much. She’s getting a lot better at talking now, but to a lot of people she’d just look like a quiet little kid. Little being relative because she’s four feet tall at four years of age.

What is a bit troubling is that the school district doesn’t have the funding to cover the kids needs. Kara gets $5 per child per year. That’s it, nothing else. She has to purchase items for her class out of her own pocket or ask parents to bring in the things she needs. Even though we aren’t floating in money we do what we can to help out. It amazes me how well she is able to do with so little money. It’s just a shame that there isn’t enough money to help our kids get a better education.